Some good news at last!
It’s been a while since I had good news, but I have some to share today! I had my angiogram yesterday. It’s not so bad. The VGH cath lab doctor did not think my newly discovered heart condition should interfere with the transplant I so desperately need! Now comes more waiting. The transplant folks want…
Discharged from hospital
I have been discharged from hospital. Many people are assuming this is a good thing. They wouldn’t send me home unless I was all fixed up, right? It’s not as simple as that. I went into hospital with a badly misfunctioning brain due to a buildup of toxins in my blood. I wanted that corrected,…
Back in Hospital
It has been a while since I posted a health update, mainly because I have been too sick to do it. I am in hospital and have been here perhaps 10 days now. It has been a rough ride. Cirrhosis of the liver kills people in a variety of ways. In October I bled out…
Living one day at a time
I’ve understood for quite a while that the only way I will survive my failing liver is by getting a transplant before it kills me. That idea took on more urgency in October of 2025 when it did kill me, by some definitions. I’ve made preparations to search for a donation as soon as I…
Playing to win
Having a disease that may kill me before I get a life-saving transplant really messes with my head sometimes. For example, any time I consider buying something that could last a long time, a little voice in my head asks “Whats the point? You could by dead by the end of the year!” I try…
A small bright spot
It has been a difficult few weeks. Things change fast with end stage liver disease, mostly for the worse. For a while I was unable to digest fat. Combine that with feeling nauseous all the time, having almost no appetite, and my liver being unable to store energy between meals, and I was dropping weight…
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